SAKKS 23rd Oct ( Supprting Kids With Kabuki Syndrome )

[Jason[98.EL]]

Gday all

i am posting this on behalf of my sister who's nine yr old has Kabuki

sakks has been a great support to not only my sister and husband but a great resource to the other siblings of those that have it

see this web site
http://www.sakks.org/index.html
please take a bit of time to have a look around there

they are having a ribbon day to show support each ribbon is $2 and all the money raised goes directly to SAKKS for hopefully we will see a cure for this

also there is approx only 20 kids in Aust that have Kabuki

this is the story of my nephew Bryce http://www.sakks.org/stories/bryce/bryce1.html

you can either order the ribbons from myself or from the web site

thanks in advance

Jason

P.S I have permission to post this in here

[Jason[98.EL]]

thanks huggiebear for the support

Jason